My name is Tom. My brother and I noticed that my father’s memory was just not the same as it used to be. We had gone to see his primary care doctor a few times, and he just chalked it up to old age. We thought it was more than that, so we got a referral to a neurologist. And the neurologist confirmed our fears, saying, “Your father has Alzheimer’s.”
The results are in! We've recently completed our annual family survey. Each year, we ask our program participants about their experience, likes, dislikes, and what they'd like to see in the future. We were, of course, especially interested to see responses from this past year in light of the pandemic and the many, many changes and challenges we all faced!
Insight is very grateful to work with fantastic student volunteers and interns. We know that they teach us just as much as we’re able to impart during their time with us! Hear a little more from one of our recent virtual interns about his experience!
We began to see the changes before we had a grandchild. Those were glorious days of appropriate comments, empathy, and mostly the man we recognized. She came and we reveled in our time together. As she grew things changed subtly but change, they did. In the last six months the granddaughter’s growth in empathy, in expression, has progressed while Gramps’s has regressed. What results is a lot of interpersonal drama—much like two children.
To deal with my emotions as caregiver for a loved one, I have started writing short poems, inspired by Haiku. Traditional Japanese Haiku follows strict rules—which I surely do not. But writing when emotions bubble up has been, for me, a way to feel better.
Hi my name is Cathy, and I’m going to share with you my story about dementia. My sweet mother started having some very noticeable memory issues maybe about three years ago. I aggressively started looking for a place for her to live up here in Washington DC because she was isolated living alone in Texas. She agreed to the idea; she was very thankful at the idea of living near a child but she thought, you know, we'll see in a couple years see how I’m doing. But there was no time to wait a couple years, she was not safe being alone. So now I have a roommate!
Katelyn Sloan, our Director of Marketing, sat down with Debbie, who's mother has been a part of Insight's early stage Reconnections program for a little over two years to chat about the shift to virtual programs, ways it works for both her and her mom, and how the program has become "our people!"
As a 28-year-old, I’d recently graduated from grad school, and snagged my ideal job in downtown DC as the manager of a health nonprofit. While everything looked bright for my career, my love life was turning out to be more difficult. I was almost 30, still single, and still looking for my soulmate. Because my parents were older, I wanted to start a family sooner than later. That’s when my dad was diagnosed with cognitive impairment.
At the start of the pandemic, we had a participant that tried out virtual activity programs. Following along and tracking everyone on the screen was a little difficult. But rather than miss out, staff set up one-on-one calls to check in and provide engagement from home.
Carmen Fair is a mother of four who suffers from Alzheimer’s disease. When this journey began over 10 years ago, her children – Poli, Boni, Trissi and Allan, became her caregivers. Now, these four siblings continue to work together with the rest of their family to care for their mom and fight against Alzheimer’s.
To write about why I volunteer at Insight I have to go back about nine years. In the fall of 2011 came a realization in our family that Grandma, my husband’s mother, was struggling…something all Insight families have experienced. Ove the next five years I became my mother-in-law’s primary caregiver, forging the most intense and personal relationship I’ve ever had with anyone.
When I met with Gordon and his wife, Karen, I asked Gordon to share his experiences with this diagnosis. The couple lovingly shared an anecdote from Gordon’s counselor: “She compared the program to ice cream. I started Reconnections with one day a week, and she said one day was like one scoop of ice cream, and wouldn’t I rather have two? Yes, and make it Pistachio.”
One of the key requirements for obtaining a Bachelor of Social Work degree is to complete a two-semester long field practicum. Having always been interested in working with older adults, Insight Memory Care Center was my top choice for placement – mostly due to their stellar reputation. I interned at Insight and learned so much about dementia care during my time there.
As we continue our theme of “Sharing the Love” this month, we asked a number of our Reconnections and Day Center participants to reflect on what love means to them. Here are a few of their responses!
In our years of serving caregivers and their loved ones facing a dementia diagnosis, we have seen some incredible acts of love. Each and every one deserves a medal of honor, immense praise, and so on and so forth. However, today I would like to highlight one story in particular.
The first time I noticed a difference in my wife was about three years ago when we were packing to move from NC to Virginia. Both of us were having some medical problems as we aged and we were urged to move closer to family. Of course moving is always a stressful time in our lives and I thought that everything would be alright after we became settled in our new surroundings.
"I like that IMCC focuses on dementia-related problems and provides a focal point for families to network and socially interact in coping with dementia. It provides a community that helps us in our struggle."